Higher Education: The Real Issues at Gallaudet
The Real Issues at Gallaudet
By Lennard J. Davis
As the smoke settles over the Gallaudet University campus, there’s still a lot of steam rising. Now that the Board of Trustees has decided to conduct a new search for a president of that institution, there are still heated emotions and fuming misunderstandings that surround this event that captured the attention of the media and the nation. Given the sturm und drang of the past weeks, it’s possible to make a few observations.
First, and most amazingly to me, the internal events at a small educational institution for the deaf have become a major media event. When I was a small boy with two deaf parents growing up in the Bronx in the 1950’s, I never imagined that the issue of deafness and the problems at a deaf university would ever end up on the front page of The New York Times. But the fact is that deafness and disability in general have gone from a marginal and marginalized experience to one that is central to the fabric of this country. Whether we are arguing about Terri Schiavo’s right to live, the fate of prenatal genetic screening, or sign language at Gallaudet, we are still, in effect, saying that disability and deafness are front and center in our sense of what it means to be human. Whereas in the past to be disabled or deaf was to be abnormal or somewhat inhuman, now we are beginning to define our humanity in a dialogue with our disability.
So the events at Gallaudet were momentous not just because a little university had an internal disagreement but because the issues raised around identity resonated with the general public. One issue that surfaced early was that Jane Fernandes, the candidate chosen by the trustees to be president, was not a “native signer.” What this means is that although Fernandes was born hearing impaired, she didn’t learn sign language until graduate school. Reportedly her signing isn’t fluid and natural — she in effect speaks sign language with a heavy accent and in a way that most deaf users of ASL would feel was inadequate.
For non-deaf people, this issue was perhaps the hardest thing to understand. Why would anyone reject a president for not being “deaf enough” when the person was in fact unable to hear since birth? The difficulty might be easier to understand if you imagined deciding to elect a president of the United States who spoke with a heavy accent and whose command of English was less than perfect. Add to this the fact that one of the new definitions of being deaf isn’t that your ears don’t work — it’s that you belong to a linguistic community the way that Hispanics or the French do. Your community has a literature, a culture, a history, and a language — but the leader of your community doesn’t share fully this cultural palette. Wouldn’t you want someone who was fully of your identity?
This argument, made early on in the anti-Fernandes campaign, was quickly shot down within Gallaudet for a number of reasons — although the press continued to mention it as a factor in the demonstrations. The logic behind the “not Deaf enough” argument was flawed because the “deaf community” or DEAFWORLD, as the ASL sign indicates, is broad enough to include a range of people from hard-of-hearing to profoundly deaf, from those whose parents insisted on oral education to those who attended exclusive schools for the deaf that only used ASL or other sign languages. There are deaf people who use real-time captioning and don’t know any sign language. And of course there are the children of deaf adults (CODA’s) who are native signers but may be hearing. Do we really want to say that some of these people aren’t “deaf enough?” Would we want to exclude various people of color because they weren’t “black enough?”
The argument at Gallaudet quickly moved on from this starting point to other issues around Fernandes. Here the argument stopped being a national issue and became a local one. Many on campus didn’t like the selection process, felt it wasn’t open enough to student and faculty input, and felt that some candidates of color were passed over. Other folks on campus felt Fernandes, who had been in the administration of Gallaudet for a long time, wasn’t a “people person” and had made some unpopular decisions. Now the issue becomes one of bottom-up student/faculty governance versus top-down administrative decision-making. The by-laws of Gallaudet specify that the job of picking the president is solely that of the Board of Trustees, but any institution can only work if the consent of the governed is factored in. What happened at Gallaudet was that there was a loss of confidence in the administration and in Fernandes. And, in turn, both the administration and Fernandes seemed singularly inept in being able to slow down the protests and bringing rational discourse and process to Gallaudet. Instead, they chose, until Sunday, to “stay the course.” Even The Washington Post wrote an editorial in which it advised the Trustees to hold fast.
But “stay the course,” as we’ve learned the hard way, isn’t a particularly good strategy, especially if the course is a disastrous one. There is something to be said for the groundswell democratic process that happens from time to time on campuses and elsewhere. When people take to the streets, when teach-ins and public discussions transform a body of people so that they are united against a particular policy or person, then a kind of muscular democracy is taking shape. Of course, there is always the danger that this kind of improvisational democracy can become mob rule. But the flip side of this is that decisions by the appointed few can become tyranny. Those of us who recall issues from the past like civil rights, the Vietnam War, apartheid, sweat shops, and the World Bank will also remember how effective and important campus protests were.
As it turns out, the trustees were able to read the visible signs of discontent on the part of the students and faculty at Gallaudet, voting to restart the selection process. The good that will come out of this is that this new selection process will have to be more open, sensitive to the issues, and mindful of issues around deaf culture, affirmative action, and democracy in general.
But Gallaudet itself will have to learn from these trying times. First and foremost, I’d advise, as someone interested in the subject but as a non-Gallaudet person, that the issue of “not deaf enough” isn’t going to go away, although it may have dropped out of the Fernandes discussion. New calls for Gallaudet to become an ASL-only campus (now courses are taught in a variety of ways, including orally) smack of a kind of new deaf elitism. While it is more than legitimate to expect students to learn ASL (as it would be for students attending the Lycée Français in the United States to learn French), there must be ways to insure that people whose ASL isn’t up to snuff don’t get snuffed out in the education process. After all, identity is a complex and fragile thing. When you try to make it ironclad and rigid, you end up enforcing the kind of identitarianism that created discriminatory behaviors in the first place. Imagine the case of a person whose parents chose cochlear implants for them at a very early age, but now wants to come to Gallaudet and explore what it means to be deaf. Would there be room for such a person in an ASL-only environment?
The second area to develop at Gallaudet is a more democratic process for decision-making. Most people don’t realize that Gallaudet is one ofa small number of universities (the military academies and Howard University being among the others) that receive substantial operating support from the federal government. The reason for this status is complicated, but at base initially was for Gallaudet a kind of paternalism on the part of the nation toward deaf people. While this notion that the nation had to protect and educate deaf people turned out to have great benefits, the legacy of paternalism remains. Perhaps the by-laws of the university reflect this stance, and it would seem a logical and progressive goal to increase the democratic processes at Gallaudet so that the legacy of paternalism can be erased forever.
Finally, it would be only right and just for all sides to bury the hatchet and look toward the future. There is no question that Jane Fernandes was on paper a very viable and possible choice to be president of Gallaudet University — only real events in the real world changed all that. The trustees did their best, the students and faculty did their best, and in the end a solution was reached. There are no bad guys in this story, only passionate positions and a struggle for justice.
Lennard J. Davis is professor of disability and human development at the University of Illinois at Chicago and the author of Enforcing Normalcy: Disability, Deafness and the Body (Verso) and the newly re-edited second edition of The Disability Studies Reader (Routledge).
Hat tip to Denny
email contact: mishkazena@aol.com
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As the parent of 2 daughters who were born profoundly deaf, now ages 19 and 11, I find the slant of the press given to the recent protests at Gallaudet very disturbing. Neither of my daughters ever learned sign language. Instead, we got them cochlear implants and raised them with the Auditory-Verbal approach so that they could learn to hear and speak with ease. They have attended mainstream schools throughout, and my older daughter now attends a regular college. Last May, she graduated from high school with honors and won her high school’s French award. I argued with many deaf culture proponents when I chose this path for my girls, especially 19 years ago when only a small handful of deaf toddlers received implants as part of the FDA clinical trials.
A quote from a recent news story about Gallaudet: “Gallaudet, which receives more than $100 million in funding annually from the federal government, was rated ‘ineffective’ this year by the U.S. Office of Management and Budget. The report cited problems with the school’s retention of students and its graduation rate; persistently fewer than 50 percent of undergraduates get their diploma.”
This is why I have such a problem with Gallaudet and with the proponents of this lifestyle. If this were merely a lifestyle that affected only them, then I would say to let them go and lead their lives as they see fit. However, when a parent decides to raise a child in the deaf culture in self-contained schools, there is a cost that society must incur. Most of the time, the reading level of these children never gets higher than 4th grade. The unemployment rate for the signing deaf is also much higher.
The overwhelming majority of deaf children are born to hearing parents. The cochlear implant has enabled us to raise our children in our families and in our cultures. Like my daughters, these children not only do not struggle but also thrive in the mainstream. Deafness does not define them but, instead, is just a small part of who they are.
Residential schools for the deaf are closing left and right because the need for them is dwindling thanks to cochlear implants. The students and faculty who protested Jane Fernandes’ appointment are fools because, unless they move forward into the 21st century, they will find their numbers and the need for their college disappearing as today’s young deaf children reach college age.
Melissa, the press was given red herrings. We have many oralists, hard of hearing people and people with C.I.s on campus. The real issues are the ineffectual leadership of Dr Fernandes and the flawed presidential search procedure. 88% of the faculty members of university, the majority of the staff working in two educational programs on the campus, MSSD and KDES, and countless parents of the students voted against Fernandes. This has nothing to do with the deaf identity crisis as Fernandes implied. This was done to distract the media from the real issues.
It may interest you that as a profoundly deaf person, I grew up oral and mainstreamed in hearing schools until graduation, so did many of my college friends. We all learned sign language when we went to Gallaudet. Gallaudet does have an excellent honors program where many students fare exceptionally well.
Zena,
I notice that you almost always use the words “red herrings”.
as smokescreen ?
gwl, because they are. The deaf identity isn’t even an issue. There are many incoming students from mainstreamed programs and hearing schools. Many of these are not just oral, but also hard of hearing and users of C.I.s and hearing aids. For example, when I went to Gally, I was 100% oral and so did many of my friends. They even have a special program called HUG (hearing undergraduate) slanted for 5% of the undergraduate program. From the first year Gallaudet was established, there was always a great range of diversity among the students.
Melissa,
Can your 2 daughters speak for themselves?
It is not very wise to call us fools. We are actually moving into the 21st century. By looking at all pagers, videophones, new ASL video clips produced daily, vlogs, God knows what will be available just around the corner for us ASL users, amazing technology continue to enrich our ASL experiences that we can function very well. Really, the bottom line is that you cannot tell which is better, even right or wrong.
We are truly blessed to have a such great ASL life, even though the oppression still exists. At least, we have little more freedom, thanks to Gallaudet students and faculty. Way to go!
Thanks,
Bob Rourke
My girls absolutely can speak for themselves, and my older daughter took over much of the advocacy role that I had played as soon as she was old enough. See her website, http://www.cochlearimplantonline.com. She first developed it when she was in 8th grade in order to let other parents know what is possible for their children born deaf today and has continually updated it since then.
Melissa, you shouldn’t have called the students and faculty fools. That was an insult and I don’t appreciate your attitude. Please take the time to educate yourself the real issues facing Gallaudet. It has nothing to do with the deaf identity issues. We have many orals, hard of hearing, people with hearing aids, and cochlear implants attending Gallaudet University.
The real issues are ineffectual leadership of Dr Fernandes and flawed presidential search. You can check my factual sheet listed in the blog several days ago.
Melissa, I am profoundly deaf and I grew up oral. Believe me, it had nothing to do with cochlear implants. The deaf world have always evolved and Gallaudet has always adapted to the great diversity of students from the first year it was established.
Melissa, you shouldn’t have called the students and faculty fools. That was very rude and I don’t appreciate your attitude. Please take the time to educate yourself the real issues facing Gallaudet. It has nothing to do with the deaf identity issues. We have many orals, hard of hearing, people with hearing aids, and cochlear implants attending Gallaudet University.
The real issues are ineffectual leadership of Dr Fernandes and flawed presidential search. You can check my factual sheet listed in the blog several days ago.
Melissa, I am profoundly deaf and I grew up oral. Believe me, it had nothing to do with ‘Not Deaf Enough’. The deaf world have always evolved and Gallaudet has always adapted to the great diversity of students from the first year it was established. I am glad your daughters are doing exceptionally well, but there was no need for you to insult other people, especially when you are in the dark why the protest happened.
Okay, I apologize for saying “fools.” I think that a better word to express my thoughts is “shortsighted.”
I have been involved with deafness for over 19 years. I am quite educated, and my husband and I made the decisions we made for our girls through meeting individually with and speaking at length to those who had chosen a diverse range of options, from voices off ASL, to TC, to traditional oral, to Auditory-Verbal.
When we made our decision, especially to go the CI route in 1989, it was a very unpopular one. Now, however, the pendulum has swung greatly in the opposite direction. Hearing and spoken language are so much more easily attained for deaf children implanted as babies now that, like my daughters, Gallaudet will not be on their lists of prospective colleges. While today’s technology makes it easier to communicate for those who can’t hear, it does not change the fact that my girls and thousands of children like them do not need to rely on these technologies to communicate. They speak on the phone with ease, participate in group discussions in their mainstream classes, and watch TV and movies without captions. This is what I am referring to when I say that Gallaudet needs to move forward into the 21st century. ASL is not a part of so many of these children’s lives, nor is it likely to ever be. If Gallaudet wants to remain a viable institution, eventually it is going to have to drop its requirement for ASL. Even then, students who can hear and speak well as my girls can will likely choose to go elsewhere. That is why Gallaudet needs to focus on ways to attract these students if it wants to remain viable. That is what I meant by moving forward into the 21st century.
Thank you, Melissa. I do understand that passions are very high.
You are right. There has been tremendous changes among the deaf children, more than ever in the past. That is why we need a strong leader who is capable of leading the university to a new future. The problem is under Fernandes’s administration, various programs actually deteriorated, first at Clerc Center where the local high school and elementary school are. The elementary school already has a cochlear implant program. Then when Fernandes got promoted to Provost at the university, the quality of the academic programs declined, too. We cannot afford a person with a dismal track record to lead the university. We want someone with excellent credentials and proven track record.
I am very glad your daughters are doing exceptionally well that they can be mainstreamed to hearing universities. There are already people with cochlear implants attending the school and many are against Fernandes, not because she had an oral background, but because she didn’t have the skills to be a good administrator. I can introduce you to one, if you wish to talk to him. I don’t think he would mind.
Does this help clarify what the protest is about? Please let me know. I can provide you a factual sheet explaining the real issues.
I agree with Melissa– those who protested have made themselves look like fools to the rest of the world, because they have shown that, rather than move forward and embrace the diversity of people who also happen to be deaf, they have made themselves appear to have their heads in the sand. Rather than go forward, they are taking two steps backward.
However, as a parent of two boys who were born deaf but will live hearing lives with cochlear implants, I am only concerned with the waste of federal funds. I could care less about the actual state of the campus because I highly doubt that my kids would have any interest in seeking a place which not only exists because of a disability, but also excludes or marginalizes those who prefer to associate with the culture and spoken language at large rather than seek out those who use ASL. Perhaps 50 years ago they might have found it a useful place, but today’s children need to go where they can obtain the best education. Gallaudet has very poor test scores and graduation outcomes. One only needs to read the comments here and in other blogs to see the difficulties that graduates face in utilizing the language of the community at large, particularly those who might employ them. Just read the statistics.
It is my opinion that Gallaudet, if it prefers to be an ASL enclave, ought to simply be a private university and charge tuition to cover their costs, much like a religious institution which would be allowed to enact principles that students must abide by in order to enroll. It’s only fair.
I think that, in general, the press does a poor job of reporting on deaf education and communication. They seem to seize the sensational and run with it. Is there any truth to the “not deaf enough” argument? This is the phrase repeated in almost every news story.
By the same token, the press always reports on the signing deaf and misleads the general public into thinking that this represents the majority of deaf people when it does not. As of several years ago, the number of those who considered themselves part of the deaf culture was actually only 25%, and I suspect it is dwindling already, but those who don’t stand out don’t make the news.
It will be interesting to see who ends up being the next president at Gallaudet. That will say a great deal about the direction of the school.
Apparently one disgruntled student complained and Fernandes immediately adopted it as her mantra, despite objections from the majority of the Gallaudet University, both deaf and hearing, that the deaf card isn’t the issue. Unfortunately Fernandes found it an effective tool to distract the media from the real issues, creating a lot of damage to the university and the deaf community itself. Had this “Not Deaf Enough” been true, why was Jordan elected as a president in the first place? He was a late deafened man. We have many deaf faculty members, including me, who grew up orally.
There will be different subsets of deaf people in the university and we need a good leader to unite them all, not divide them harshly like Fernandes did.
I think it is important to see what the vision the next president has, not what the kind of communication background the person has. We need a progressive leader who is free of personal prejudice toward all subgroups of the deaf community and is ready to lead the university to a new generation different from any other generation. We also need a leader who can address all the oppression including audism and racism that plague the university to this day.
Amy, why don’t you read what I said to Melissa before you make a fool out of yourself insulting others when it is obvious you have no idea what you are talking about?
This dialogue is really starting to bother me, so I decided to chime in. Melissa, I understand a little about your vantage point: you’re living your life as a hearing person and, wham, all of the sudden you are in charge of the lives of two deaf babies….your babies. This sounds like a profound experience. But I want to address your statement here:
“Residential schools for the deaf are closing left and right because the need for them is dwindling thanks to c-implants”.
I caution your “thanks” given to c-implants for the closing of deaf schools. Its almost as if you are saying “thanks for killing an entire culture”. Do you realize that you are talking about some form of genocide? Sure, you are not talking about taking lives…but you are talking about taking away life from a vivrant community and culture. There is nothing sad, disabiling, poor, inadequate, or dysfunctional about deafness or deaf culture. Please get that idea out of your head. I understand your desire for your children to be ‘like’ you in ways, but I also know that it is important to champion the differences in our children. Now that your kids have been implanted with permanent testaments to the hearing world, at least give them the oppurtunity to experience the deaf world, deaf culture and just a little deafness.
Oh, and by the way, if it weren’t for deaf schools, I wouldn’t be alive. My grandparents met in deaf school and got married right after graduation. I thank God, daily, for their marriage, their deafness and their ability to give life to so many people (quite literally they had three children, ten grandchildren, and six great-grandchildren all which will fight your form of deaf genocide until their dying days!)
I think that any new president of Gallaudet faces what may be an insurmountable task. What would entice students raised solely with spoken language in mainstream schools all their lives to suddenly decide to leave the mainstream and attend Gallaudet? Why would my girls or Amy’s children choose Gallaudet? There is no motivation for them to. My daughter is studying documentary filmmaking, which includes editing both the video and dialogue in her films and adding music. Why would she choose Gallaudet instead of the best possible school for her chosen field? I have two friends whose CI children chose Brown and the University of Chicago, two schools with academic reputations that greatly exceed not only Gallaudet’s but also most schools’. As more and more deaf children receive CIs as babies, learn to hear and speak on par with their normal hearing peers, have language that is equal to or above their normal hearing peers by kindergarten, and attend and excel in mainstream schools all their lives, why would they choose Gallaudet? Can any president raise the school’s standards to such an extent as to be competitve? What’s more, how can any president accomplish this if one of the primary focuses of the school continues to be to maintain deaf culture and ASL as the first language of deaf students? If the students and faculty are shortsighted and continue to press for this, then I very much doubt that the school will still be in existence a couple more generations down the line.
The Clark School in Massachusetts is an example of a school that saw the handwriting on the wall and changed to stay alive. They changed from a traditional oral approach to incorporate more and more auditory training. Then, when it became apparent that parents weren’t going to send their children away to residential schools anymore, they expanded to other geographic areas and started a mainstream center to support students in the mainstream. I may not agree with all of Clark’s methodologies, but I respect their realistic assessment and acceptance of the situation. Gallaudet will need to take similar actions in order to stay alive.
Melissa, yes I agree with the challenges the new president of Gallaudet will face.
You asked an excellent question: Why would students raised in hearing schools and using the spoken language go to Gallaudet?
Look at me. I grew up oral, but I still couldn’t receive the full language orally. It was like that way with many of other deaf oralists. It is very difficult to lipread the teachers all day without a break and it is even doubly hard to catch what the classmates say. So we miss out a lot. At Gallaudet, we are able to see full communication 100%.
About Clarke School, they have always provided a lot of auditory training. My brother went there after we both graduated from a private oral school. ADA made it a mandate that public schools provide education for the deaf and hoh students, so Clarke had to make changes, just like any other progressive schools, in order to stay competitive.
You see, there will always be students who cannot use their ears, for whatever reasons. We have children from deaf families using sign language as a linguistic minority. We have many oralist and hard of hearing as well as many users of C.I. who wants to use sign language and therefore they come to Gallaudet. Now they do have more choices due to ADA, however, the mainstreamed universities don’t provide the same accessibility like Gallaudet and NTID offer. Your daughters don’t need to use sign language at all, so they don’t need to go to Gallaudet, if they don’t want to. That is their prerogative and I am glad that they have more choices.
What will the future bring? I suspect now that the stem cell therapy is doable within five years, there would be tremendous changes, and yes, Gallaudet will need to evolve again, as it always does
The estimates that I have heard for stem cell therapy are more like 25 years down the road, and even then it may not address all causes of deafness as all don’t involve just the hair cells, Connexin 26 in particular.
I think that one issue that you are missing is that today’s children raised with CIs with the Auditory-Verbal approach or something similar do not rely on lipreading. My younger daughter cannot even read lips at all, and we have even tried to teach her for the times when her CI processors are off. It is this difference that is key in the direction that the younger generations will take educationally. While it’s not perfect hearing, it’s very close. My girls score 100% in tests of auditory-only comprehension in quiet and in the normal hearing range or close to it in noise since they received bilateral implants. They are not exceptions but are the norm.
We lived in Massachusetts when our older daughter was born and visited Clarke in 1987 when she was 6 months old. At the time, the school specialized in those who were totally deaf or almost so, and they were all wired to FMs around a central table. As parents at the time, we found the speech, language, and academic skills discouraging. However, today all of those children would be implanted. Our Auditory-Verbal therapist, though, focused only on hearing and listening. It was a far different approach at the time to what Clarke and the other traditional oral schools offered.
25 years, hmm. that is a long way ahead.
No, I didn’t miss the fact that children with successful C.I. implants don’t need to lipread at all. The key word is successful. Not all kids fitted with C.I. are as successful as yours. I am sure as dedicated parents, you followed up very thoroughly, providing your kids with intensive aural and verbal therapy from a very young age, right? That made the whole world of difference.
Unfortunately the success rate of C.I. is not as high as claimed by the C.I. manufacturers, for whatever reasons. I have been hearing reports of some kids with C.I. not doing well. I would say, with the better technology and more awareness of the importance of intensive aural and verbal therapy, the success rate will be higher. There are other kids who cannot benefit from C.I. such as hard of hearing children who still need visual aides due to the limitations of their hearing aids.
Many deaf families, a linguistic minority who takes fierce pride in their deafness, are not advocates for C.I.s. And they are perfectly entitled to feel this way.
So this is what Gallaudet will be dealing with, a group of kids who are visual oriented and more kids coming in who collect information aurally. It will be a big challenge, indeed, but I expect for some time to come, Gallaudet will be committed to its original mission to provide information visually.
That there are a significant number of kids who cannot benefit from a CI is false and misleading. I agree that parental involvement and commitment is crucial. However, most children implanted early and in a good Auditory-Verbal or even Auditory Oral program succeed today. The exceptions are those with other overriding disabilities or with physical anomalies that prevent the implant from working correctly. I meant it when I said that my girls are not exceptions. You just need to travel in the circles that I do to see them. It is those implanted late or those in TC or signing programs who do not get the necessary auditory training who struggle more.
Just caught Marc’s comment – Marc, I have to say that I thought statements such as yours, using the term “genocide,” disappeared years ago. Deafness is not first a culture. It is first a disability. This is a hearing world. As a hearing person, I know all too well what deafness deprives people of. That is not to say that you cannot lead a full, rich life without hearing, but I believe that it is richer with hearing. If you think that children today should be made to be a part of the deaf culture to prevent this supposed “genocide,” then you are a very selfish person who would deny children the chance for an easier life than you have had.
My older daughter is fully cognizant of the controversy over the deaf culture, educational methodologies, and cochlear implants. We were totally embroiled in the controversy early on because she was one of the first 200 children in the country to receive a CI. We fought professionals who would have deprived her of her right to have an implant. We dealt with accusations by the signing deaf of child abuse. We were told that she should be taken away from us to be raised in a residential school for the deaf. She was likened to Frankenstein with wires coming out of her head. If you want to know why I still harbor bitter feelings today, this is why. Mishka seems to be one of those whose mind is more open, and it is only with such an attitude that the divide can be crossed. What’s more, though, it is those who still maintain attitudes like yours who have chased my girls totally away from the deaf culture. My daughter is adamant that she never wants to be a part of the deaf culture and that she has no interest in learning sign language because she sees those who still hold your dated views as those who would have deprived her of the life that she has led and the opportunities that have been open to her because she can hear and speak. She chooses to be a part of the entire world and not just a small piece of it. I am glad that you are happy with your life, but by speaking of genocide, you will only further the deaf culture’s demise.
I don’t know if there is a word limit on here or not, but I am going to paste in below an essay that my daughter wrote a few years ago that is her speaking loudly and clearly for herself. Hopefully, you can get beyond your anger and see that she is leading a full and rich life with her hearing and without the deaf culture. As she says, she fully realizes that she is different than her peers in terms of her hearing, but that is okay with her.
Leaving Silence Behind
Without the rigorous but tremendous miracles that I’ve had, there would be no astonishing sounds traveling through my ears and around me to make my life easier. I wouldn’t have been able to just simply say or hear “Hi! What’s up?” My mouth would have opened and moved as if I were trying to speak, but no words would have come out. My hand couldn’t have been raised up in the air to answer the questions in my own crystal clear voice, like other students in my class, not to mention that I wouldn’t have been able to pick up the phone and put it to my ear and my mouth to hear and speak to my long distance grandparents, which would make me miss them even more. My long fingers wouldn’t have touched the grand piano to play the tunes of magnificent songs. The waiter at the restaurant could come up to me, but all I would have seen is him/her standing there and his/her mouth moving. What would I do? How could I communicate with that person? I wouldn’t even have been able to hear the real quality of sounds of my parents saying, “I love you.” Even if I just had a hug meaning, “I love you,” it still wouldn’t be enough to show the emotions of love. Sounds are needed to be there for me to understand the expressions of anger, happiness, excitement, and sadness. Sounds are precious treasures that cannot be kept away from me. It was almost like having a treasure box with precious sounds inside it, sitting and waiting for me to open it to bring all the real miracles that have come to me.
I can walk in the diversified crowds of people in the halls at school or on the sidewalks in the city with noises surrounding me and seem to be unnoticeably different from each person because I can speak, hear and communicate as though it came as naturally for me. Although, there is something different and unique about me from the rest of the crowd and even from the other students in my classroom, I can still communicate with other people well. That’s because I learned to listen and speak with a cochlear implant and Auditory-Verbal therapy!
Melissa, it may surprise you but many deaf people don’t consider deafness a disability. They consider themselves a linguistic minority, with rich culture, language, history, and traditions. They are proud to be deaf, and so do I. I definitely do not feel disabled. I don’t need to be ‘fixed’. However, I don’t force my personal views on others and I think it is important that you do the same thing. We all have different values and we need to respect everybody’s values.
America is full of many subcommunities, and deaf culture is one. Yes, there is such a thing as a deaf culture whether you like it or not. There was a lot of resistance to cochlear implants but more are accepting it now than before. However, there would be a group who have no interest in C.I. and their wishes are to be respected, too. Just like I respect your wishes to have your kids be fitted with cochlear implants.
It doesn’t surprise me. I have heard that before but have to disagree. It may be all you say it is, but it is also the absence of hearing, which is a disability. And, I don’t force my views on others. I never suggested that you should get cochlear implants. My anger was toward those who would have denied the choice to us and to other parents. Saying that parents who chose CIs for their children and don’t teach them to sign is genocide is certainly unaccepting of both the rights of parents to make choices for their own children and the right of those children to have what most would consider an easier life.
I respect your choice as an adult, but I do have a problem with parents who choose in this day and age not to implant their children and teach them to hear and speak because they are making an irrevocable choice for their children. My girls could always choose to take off their implant processors and be deaf and learn ASL, but a child raised with ASL without access to hearing can never learn to hear and speak as well because the brain loses its elasticity and the auditory nerve fibers atrophy. I recognize that this is my opinion, and I would never insist that another parent make the choices that I have. I do my best to educate them as to why we made the choices we have, but that is it.
Now, I am bowing out of this discussion because I have said all I have to say and have to give my full attention back to my paying job.
You are making a moral judgement against others for not putting C.I.s on their children. These children are theirs and they make what they feel is the best for their kids, just like you did with your kids.
Melissa,
They key here is inclusion. You mention open mindedness as something I lack, but it is in fact something you struggle with instead. The fact remains that back in the day, the hearing world rejected deaf people. They forced us to live together, excluded from the rest of the world. Remember Martha’s Vineyard? Please Remember Martha’s Vineyard. We developed our own way of life, our own language, set of norms, culture, etc. All along the way, as people from the hearing world saw our language as “cool” and “neat” and “pretty”, we started to try to let hearing people into our culture: inclusion. But then people like you and scientists and doctors started to throw the exclusion card again: like multiple Christopher Columbuses from the shores of the hearing land “We’re claiming this deaf land as hearing land, now become fixed”. I understand the medical model, my Dad is a physician and I’m a clinical social worker. The medical model is driven by need and problems. The problem is…there’s nothing to fix. We’re fine, great, dandy and totally enjoy life.
But, you said it yourself, in your own admission ” My daughter is adamant that she never wants to be apart of deaf culture….” and that, Melissa, is exclusion and closed mindedness. I think the situation here is that most people in the deaf community would not perceive your daughter(s) as deficient in anyway (hearing, deaf, deaf with cochlear implant, any given permutation). But, your daughter has already adopted an exclusive paradigm, in her young age. She’s been trained to push people out based on their culture, their upbringing, their heritage. You said it yourself.
Melissa, I think that if many kids had advocates, such as yourself, as parents the world would be a better place. I just want you to know and taste, at least a little, the joys, brilliance and abundance within deaf culture. Don’t shut us out and try to make us like you, please.
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